The Down Syndrome Foundation of Madrid relies on its experience with NeuronUP and the opportunity telerehabilitation offers for both professionals and patients.
The work of Down Madrid
The Madrid Down Syndrome Foundation is an organization that currently supports more than 1,300 people Mental disabilities of all ages, including their families.
It has the following services and areas of activity: early intervention center, family school program, two special schools, a vocational center, a voluntary service to support people with intellectual disabilities who volunteer in other organizations. As well as a program to promote autonomous life, the service of leisure, sport and culture, training and support in information and communication technology, psychological intervention, speech therapy and psycho-pedagogy, FOCUS program (post-compulsory education), employment support service and a program to support adult life and aging.
How Down Madrid works
Cognitive training is one of the pillars of our interventions. For over 30 years we have been using and using various formats and exercises that allow us to work on cognitive functions.
Attention, orientation, memory, executive functions, language, social awareness, visual skills are skills that we work with the participants on a daily basis. And we work on it in different “ways”: group, individual, with cards, with games, with suggestions for daily life, challenges …
NeuronUP & Down Madrid
In March 2020 we added NeuronUP to our toolset and our way of working at Down Madrid.
Childbirth promotes telerehabilitation
The restriction created by the health crisis served as a catalyst to get them included. Attendees were unable to attend their usual church services in person and NeuronUP is one Tool that adapts very well to “tele-intervention”“. The satisfaction of the participants, their families and the professionals who used NeuronUP while in prison was very high. It made it possible to work on the cognitive functions and some academic skills in a very appropriate and personalized way. In addition, we were able to do this in a pleasant way, which resulted in participants adhering to the intervention well even in such a complex situation.
Today in Madrid
As of September 2020, most of the participants in Down Madrid are visiting their usual centers and services. We continue to work with NeuronUP, but are now proposing intervention programs in the centers. We developed one Program for the step-by-step implementation of the tool with the aim of reaching all services. Currently, participants from schools, vocational centers, vocational training, employment, intervention, and adult life and aging are regularly using this tool.
The experience of working with NeuronUP
From our experience we mainly highlight those large number of different activities that there are that wide range of cognitive functions that can be worked on Possibility to individualize each intervention and above all that it is attractive and entertaining for the participants. There is no learning without motivation. And since we’ve been working with it, we’ve seen a high level of motivation in using the tool for those who use it.
Flexibility for patients and professionals
Although the vast majority of participants are using the tool in the centers they visit, there is a group that is working on it Home Sessions with NeuronUP2GO. These are people who as a vulnerable population have not yet been able to join personal activity. After the integration of NeuronUP, the people who cannot attend the sessions in person will conduct the same sessions from home as their colleagues at the center.
Other people who use this type of work from home as well are those who need a stronger emphasis on cognitive training for various reasons. In a city as big as Madrid It is very difficult to get personal treatment two or three times a week in the Down Madrid centers. therefore that The ability to receive this treatment from home is especially useful and positive.
A big advantage is that the interventions can be suggested and monitored from the center, so participants don’t have to come and participate from home. One of the profiles in which we develop this type of telerehabilitation is the elderly. In many cases they have a lot of difficulty getting to our centers physically and it is a group where cognitive training is especially important. The participants, their families and we as specialists are very satisfied with this way of working.
How to conduct an effective intervention
As with any modality of intervention A good initial assessment of the participant is essentialThis allows us to identify the areas that require more work. Also the recognition of strengths.
The vast majority of sessions are conducted by the participant at home, but we have seen that it is positive to include a face-to-face session with the professional coordinating the intervention throughout the intervention. We use these sessions to dispel doubts, to observe some difficulties and strengths that we fail to see in telerehabilitation, and to establish or strengthen the connection between the participant and the therapist. In short, at pPersonalize the treatments more and improve our intervention.
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